Tag Archives: Autism

Mar17

Moving Tomorrow

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Moving Tomorrow

This is it!!!.. we are moving tomorrow!  Stressful and stress eating comes hand in hand. I’m looking at roller shades for the living room. I need to be on top of everything else.

Everyone is excited  except for Joshwa who has been acting up. I think because of the change and I know that he doesn’t like change. He thrives on his routine and his schedule.

We had to stay inside a room for 30 minutes because he had a tantrum. Philbert told me to let me go pero I can’t because it was too much. First he deleted the photos sa Camera then nilusot kamay sa Wire nasagutan the last straw was he pushed Ellen our maid. Which we I do  not tolerate so because he was upset I needed to isolate him to calm him down. It doesn’t help  that Adrianne was doing the sideline commentaries. See! I told you Kuya! Mommy Kuya  is not behaved right??

He are some of the things that we did First we tried singing and then we tried counting he had to count 1 to 100 and then I sat by the door and he was trying to pull me away from the door. So we did Jumping Jacks together and while we were jumping he was counting 1-100. Full workout and when he was done we were both on the floor sitting. I asked him are you tired Joshwa? He said yes… So Am I!!!! He was asleep and hour later.

I dread doing the discipline but whose going to do it? . Now he’s off the computer til March 31 and no Agent OSO for 1 week. He is trying to bargain with me I told him no computer til March 31 he said okay computer time on March 21. I said No til March 31 he said okay computer time on March 20. But I put my foot down I really have to apply a bit of tough love. It’s not easy but I need to do it not a fun moment for me.

Twitt
Feb7

Joshwa’s Tantrums

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Joshwa’s Tantrums

I haven’t written about Joshwa’s bad behavior in a long time..First time in a long time na sinulatan ako ni Teacher na si Joshwa daw umaalis nang classroom at sa ibang classroom na nakikita. Andun sa classroom ni Teacher Micah na crush ni Joshwa. Autism +  Puberty+ Hormones= A disaster waiting to happen.

Eto na naman tayo ibang behavior nawawala ibang behavior pumapalit. Kanina Joshwa had a tantrum at nahirapan talaga si Teacher kasi gustong lumabas habang busy si teacher nahuli sya pinaupo ayun nag tantrum naglupasay pa. Imagine a 10 year old boy doing that but in our home normal na lang yan sa amin. Sabi nang yaya niya kawawa daw itsura nung teacher.  Punta ako sa school ni Joshwa sa Thursday para kausapin si teacher.  Super grateful sa teacher ni Joshwa for being patient with him.

Twitt
Dec17

Joshwa and Puberty

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Joshwa and Puberty


This is it we are in puberty and this is one crazy rollercoaster ride. Joshwa’s voice is starting to change he is getting taller. This ur foray into what he will be like as a teenager. Lord Help Us!!! Puberty and being a teenager is challenging for any parent.  Imagine how challenging this will be if your child has autism. From what I have heard it can cause aggressive behavior and depression.

This is another big transitional hurdle for everyone in the family. This is another thing you don’t read too much about and no one ever talks about. I am prepared to see some regression which is not fun. He is verbal, affable, reads and does he great in school all of which we were told he’d never do.

I still have issues with the words recover and healing from autism.I have issues with words like ‘healed,’ ‘cured,’ ‘recovered.’ I don’t mind those that use them but I don’t use those words. While I’m always thrilled for anyone else’s child’s progress, my son still has autism. And we have adulthood to plan for.

Twitt
Jul4

A New School

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A New School

I’m looking at a new school for Joshwa. I’m halfhearted about this school but in my heart I know that this is the best that we can do for him. The list of requirements  is so long I feel like I’m doing a thesis research just by reading this list. Just thinking about it stresses me out am I ready for this? Am I ready to send him to this school with a live in facility. I have a lot of reservations but somehow I feel that if I don’t let him go how will he learn. But if I do let him go and somehow something goes terribly wrong I don’t know If I can handle it.  I’ve been asking some family members and friends about their opinions. Some say that I am crazy for ever thinking about this. Most of them disagree with me and those that disagree don’t know how hard it is. Some are surprisingly supportive!!! We decided that we will submit ourselves to the screening process if Joshwa passes and by some miracle we can afford it then maybe it’s meant to be.  This  for school year 2012-2013

Twitt
May17

Broken

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Broken

 

Joshwa broke my necklace today it was my new Phiten necklace and I will have it repaired.When I found it I just said Joshwa!!! in my sternest voice and he was so scared and my heart went out to him.  He tried to hide it under the sofa because he was so scared that I might get mad.I just hugged him and told him that I loved him. I didn’t make it a big deal because it wasn’t. Having Joshwa and Autism made me realize that no matter how angry you get about things that are broken or destroyed. It wasn’t worth being angry about.  At the end of the day things have their shelf life, things get ruined and it is something that is beyond anyone’s control. The most important thing is that he is safe and he is okay and that is all that matters to me. Which reminds me to also stop thinking about looking for a fat burner

Twitt
Apr25

The Ten Commandments of Autism

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The Ten Commandments of Autism

Nothing is worse than getting a diagnosis of autism (as if that isn’t terrifying enough) to see another parent in the same situation with tons of resources (money) going to clinics, travelling to see the “best” doctors, hiring ABA therapists to work one-on-one with their child, enrolling their kid in an expensive, tutition based “autism school” while you are lucky to get some therapy on whatever it is that you can afford. Read the rest of this entry →

Twitt
Apr23

Swimming

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Swimming

Totally loved looking at this photos when the kids we went swimming. Joshwa totally loved it and wouldn’t leave the side of the pool which was good because I wasn’t terrified that he would jump into the pool. For the first time ever I had a stress free day and forgot about the worries  and totally had so much fun.

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Twitt
Apr16

Joshwa Writes

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Joshwa Writes
6 Digit Lotto by Joshwa

Yes you read that right, Joshwa is now starting to explore the idea of writing on paper. Initially he used to write on the walls but he is writing on paper. He can write on anything that he can get his hands on. He wrote on my Starbucks Planner but it didn’t upset me at all.  One thing I learned about autism. Everything is beyond your control you need to learn to just let it go. We are currently to remove PCSO Lotto from his routine which of course isn’t easy thus he writes on paper to let me know that he wants to watch it. Read the rest of this entry →

Twitt
Mar30

Disability Beatitudes

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Disability Beatitudes

This poem was recited during Joshwa’s recognition day and this poem almost moved me to tears. Very touching and yet it was everything that a person  with disability should tell the whole world. I failed to catch the name of the author and yet when I googled it just says that the author was anonymous.

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Twitt