Category Archives: Autism

Jul4

A New School

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A New School

I’m looking at a new school for Joshwa. I’m halfhearted about this school but in my heart I know that this is the best that we can do for him. The list of requirements  is so long I feel like I’m doing a thesis research just by reading this list. Just thinking about it stresses me out am I ready for this? Am I ready to send him to this school with a live in facility. I have a lot of reservations but somehow I feel that if I don’t let him go how will he learn. But if I do let him go and somehow something goes terribly wrong I don’t know If I can handle it.  I’ve been asking some family members and friends about their opinions. Some say that I am crazy for ever thinking about this. Most of them disagree with me and those that disagree don’t know how hard it is. Some are surprisingly supportive!!! We decided that we will submit ourselves to the screening process if Joshwa passes and by some miracle we can afford it then maybe it’s meant to be.  This  for school year 2012-2013

Twitt
Jun7

A Mother’s Prayer

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A Mother’s Prayer

I want to share a beautiful and true prayer from one parent to another. We have been struggling with our son’s Autism for 9 years and i pray everyday that he will grow up and be able to live a happy healthy life again. While Joshwa is not high functioning he is on the moderate autism scale. We have our issues everyday. His stims are sometimes worse than before and Its getting harder to remember how he was before this all started.I pray for strength for all families that are going through any kind of mental and physical illness. This is such an inspirational poem. Thanks so much to my friend Pinky for sharing this poem

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Twitt
May17

Broken

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Broken

 

Joshwa broke my necklace today it was my new Phiten necklace and I will have it repaired.When I found it I just said Joshwa!!! in my sternest voice and he was so scared and my heart went out to him.  He tried to hide it under the sofa because he was so scared that I might get mad.I just hugged him and told him that I loved him. I didn’t make it a big deal because it wasn’t. Having Joshwa and Autism made me realize that no matter how angry you get about things that are broken or destroyed. It wasn’t worth being angry about.  At the end of the day things have their shelf life, things get ruined and it is something that is beyond anyone’s control. The most important thing is that he is safe and he is okay and that is all that matters to me. Which reminds me to also stop thinking about looking for a fat burner

Twitt
Apr27

PTA

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PTA

 

Last Monday before  the shoot  ended (that I will blog about soon), I received a call from Philbert saying that Joshwa’s Teacher needs to talk to me. I told him that why couldn’t you go since you were at home anyway. He said that she needs to talk to you and abruptly hung up the phone. I called the teacher and told her I would be there and  as soon as I can I went home and went straight to Joshwa’s school it’s on the same building. Lo and Behold the teacher wanted to talk to Philbert and not me. The teacher noticed that there were issues with Joshwa’s behavior that were needed to be addressed  and she knew that she can call me and talk to me she also wanted to talk to Philbert to make sure that they were on the same page. Philbert just didn’t want to go and talk to her she was calling him and didn’t answer and turned off his phone. I don’t know what happened.. It’s so stressful because I didn’t know how to explain his behavior. How did this happen the PTA that you thought was about your son suddenly becomes about your husband. Thought bubble just give me something that I can talk my way out of anything and everything. Throw in rv repair questions and I could take it and try to answer you anything but PTA please.

Twitt
Apr25

The Ten Commandments of Autism

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The Ten Commandments of Autism

Nothing is worse than getting a diagnosis of autism (as if that isn’t terrifying enough) to see another parent in the same situation with tons of resources (money) going to clinics, travelling to see the “best” doctors, hiring ABA therapists to work one-on-one with their child, enrolling their kid in an expensive, tutition based “autism school” while you are lucky to get some therapy on whatever it is that you can afford. Read the rest of this entry →

Twitt
Apr23

Swimming

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Swimming

Totally loved looking at this photos when the kids we went swimming. Joshwa totally loved it and wouldn’t leave the side of the pool which was good because I wasn’t terrified that he would jump into the pool. For the first time ever I had a stress free day and forgot about the worries  and totally had so much fun.

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Twitt
Apr16

Joshwa Writes

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Joshwa Writes
6 Digit Lotto by Joshwa

Yes you read that right, Joshwa is now starting to explore the idea of writing on paper. Initially he used to write on the walls but he is writing on paper. He can write on anything that he can get his hands on. He wrote on my Starbucks Planner but it didn’t upset me at all.  One thing I learned about autism. Everything is beyond your control you need to learn to just let it go. We are currently to remove PCSO Lotto from his routine which of course isn’t easy thus he writes on paper to let me know that he wants to watch it. Read the rest of this entry →

Twitt